Collateral damage of the COVID-19 pandemic on lysosomal storage diseases: A single unit experience

KILIÇ YILDIRIM G., Altinoz S. T., Sonkurt H. O.

ANNALS OF CLINICAL AND ANALYTICAL MEDICINE, vol.13, no.2, pp.156-160, 2022 (ESCI) identifier

  • Publication Type: Article / Article
  • Volume: 13 Issue: 2
  • Publication Date: 2022
  • Doi Number: 10.4328/acam.20893
  • Journal Name: ANNALS OF CLINICAL AND ANALYTICAL MEDICINE
  • Journal Indexes: Emerging Sources Citation Index (ESCI)
  • Page Numbers: pp.156-160
  • Keywords: COVID-19 Pandemic, ERT, Lysosomal Storage Disease, COVID-19 Traumatic Stress Scale, MANAGEMENT, IMPACT
  • Eskisehir Osmangazi University Affiliated: Yes

Abstract

Aim: COVID-19 epidemic caused significant problems in countries' health systems. The direct and indirect effects of this unprecedented outbreak on patients with rare diseases are not clear. The aim of this study is to identify the pandemic-related problems encountered by adults with LSDs and parents who have children with LSDs and to evaluate the socio-economic and psychological effects of the COVID-19 outbreak in the lysosomal diseases community.