Collateral damage of the COVID-19 pandemic on lysosomal storage diseases: A single unit experience

KILIÇ YILDIRIM G., Altinoz S. T., Sonkurt H. O.

ANNALS OF CLINICAL AND ANALYTICAL MEDICINE, cilt.13, sa.2, ss.156-160, 2022 (ESCI) identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 13 Sayı: 2
  • Basım Tarihi: 2022
  • Doi Numarası: 10.4328/acam.20893
  • Dergi Adı: ANNALS OF CLINICAL AND ANALYTICAL MEDICINE
  • Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI)
  • Sayfa Sayıları: ss.156-160
  • Anahtar Kelimeler: COVID-19 Pandemic, ERT, Lysosomal Storage Disease, COVID-19 Traumatic Stress Scale, MANAGEMENT, IMPACT
  • Eskişehir Osmangazi Üniversitesi Adresli: Evet

Özet

Aim: COVID-19 epidemic caused significant problems in countries' health systems. The direct and indirect effects of this unprecedented outbreak on patients with rare diseases are not clear. The aim of this study is to identify the pandemic-related problems encountered by adults with LSDs and parents who have children with LSDs and to evaluate the socio-economic and psychological effects of the COVID-19 outbreak in the lysosomal diseases community.