Research Information System
Turkiye Klinikleri Pediatri, vol.34, no.1, pp.19-26, 2025 (Scopus)
Objective: It was planned to evaluate the quality of life of cerebral palsy (CP) patients through the eyes of their primary caregivers. Material and Methods: In this study, the functional level of patients between the ages of 4-12 who were being followed with the diagnosis of CP was determined with the Gross Motor Function Classification System and the The CP Quality of Life for Children was applied to their primary caregivers. According to the survey results, family and friends, participation in life, speech and communication, health, special equipment, pain and discomfort, access to services, and parental health assessment scores were made and the quality of life was calculated as a percentage. Result: The study was conducted with a total of 100 participants. 47 of the participants were girls (47%) and 53 were boys (53%). 7 patients with CP (7%) had spastic quadriplegia, 60 patients (60%) had spastic diplegia, and 33 patients (33%) had spastic hemiplegia. In the quality of life score assessment, feelings among friends and family were 65.4±15.1, participation in life 56.4±21.2, speech and communication 70.1±18.9, health 59.4±16.3, special equipment 50.1±31.4, pain and discomfort 57.3±14.4, access to services 55.5±15.6, and parental health 59.7±14.9. Conclusion: Improving the quality of life of individuals with CP requires a multidisciplinary approach, and individuals, families, and society should be considered as a whole in this process. It is important to determine individual health problems and risk factors and make treatment plans. This comprehensive and integrated approach can improve the quality of life of individuals with CP and their families and help them live a more hopeful, satisfying life.